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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
Emma Gee and Scope Victoria (Australia) have developed
an online community for young people with an ABI. This group is
designed to provide support and information for young people who
live with an Acquired Brain Injury (ABI), their relatives and friends.
Whether you've had a stroke a car accident or any other kind of
acquired brain injury we'd love you to join. Perhaps someone you
love is living with a brain injury. If this is the case, join us!
For more
information download full document
Provide information on the latest policy developments relating
to children and young people in each of the 4 nations and across
the UK
www.childpolicy.org.uk
c/o National Children's Bureau
8 Wakley Street
London EC1V 7QE
Tel: 020 7843 6063/6068
Fax: 020 7843 6443
Email: england@childpolicy.org.uk
c/o Childcare NI
216 Belmont Road
Belfast BT4 2AT
Tel: 028 9065 2713
Fax: 028 9065 0285
Email: ni@childpolicy.org.uk
c/o Children in Scotland
Princes House
5 Shandwick Place
Edinburgh EH2 4RG
Tel: 0131 228 8484
Fax: 0131 228 8585
Email: scotland@childpolicy.org.uk
c/o Children in Wales
25 Windsor Place
Cardiff CF10 3BZ
Tel: 02920 342434
Fax: 02920 343134
Email: wales@childpolicy.org.uk
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Information for all parents about all aspects of education; publications;
advice line.
ACE: Advisory Centre for Education
1b Aberdeen Studios
22 - 24 Highbury Grove
London
N5 2DQ
Tel: 0808 800 5793Mon-Fri 2 -5pm
Web www.ace-ed.org.uk
AFASIC
2nd floor
50-52 Great Sutton Street
London
EC1V 0DJ
Tel: 0845 3555577
Web: www.afasic.org.
The Association of Personal Injury Lawyers (APIL) holds a list
of all solicitors specialising in such claims. If you have a solicitor
in mind, you can ring APIL to check that s/he is registered. They
can also give you details of registered P.I. lawyers local to
you.
Tel: 0115 958 0585
AvMA (Action for victims of Medical Accidents) is an independent
charity which promotes better patient safety and justice for people
who have been affected by a medical accident.
Web: www.avma.org.uk
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Tanners Lane
Barkingside
Ilford
Essex IG6 1QG
Tel 020 8550 8822
Fax: 020 8551 6870
email: dorothy.howes@barnardos.org.uk
The British Institute for Brain Injured Children is a national
charity supporting children with a learning difficulty.
BIBIC
Knowle Hall
Bridgwater
Somerset
TA7 8PJ
Tel: 01278 68406
Web: www.bibic.org.uk
Campaigns for greater use of bicycle helmets. Offers information
on usage of helmets. Price list, order forms and instructions
on the wearing of helmets. Child friendly website
Bicycle Helmet Initiative Trust
43-45 Milford Road
1st floor
Reading
Berkshire RG1 8LG
Tel: 0118 9583585
Web: www.bhit.org
Helpline staffed by health professionals, who can answer questions
on some medical aspects of ABI.
Brain and Spine Foundation
7 Winchester House
Cranmer Road
Kennington Park
London SW9 6EJ
Tel: 0808 808 1000
Email: info@brainandspine.org.uk
Web: www.brainandspine.org.uk
Individualised developmental therapy for children who have both
physical and congnitive disabilities. Exercises are taught to
parents and carers so that they can carry out the programme at
home.
Brainwave
Huntworth Gate
Bridgwater
Somerset, TA6 6LQ
Tel: 01278 429089
Fax: 01278 429622
E-mail: enquiries@brainwave.org.uk
Web: www.brainwave.org.uk
Caring for people affected by road crashes
Tel: 01484 559909
Web: www.brakecare.org.uk
P.O. Box 1919,
SHEFFIELD
S7 2XJ
Tel/fax: 07002 222 426
Email: babicmsecretary@hotmail.com
An independent company based in the Scottish Borders dealing
with in-car safety products. Visit www.safefamilydriving.com for more information.
1 Regent Place
Rugby, Warks
CV21 2PJ
Tel: 0870 443 5252
Email: bacp@bacp.co.uk
Web www.bacp.co.uk/members_visitors/members_visitors.htm
Tel: 020 7357 6480
Web: www.baot.co.uk
2 Oakfield Road
Hightown
Merseyside
L38 9GQ
Tel: 0151 929 3229
The British Epilepsy Association produces many publications and
has an informative website and a free-phone helpline:
Tel:0808 800 5050 Helpline
Web: www.epilepsy.org.uk
Email: helpline@epilepsy.org.uk
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Carers UK
20 -25 Glass House Yard
London
EC1A 4JT
Tel:0207 490 8818
Web www.carersonline.org.uk
PO Box 833
Milton Keynes
Buckinghamshire
MK12 5NY
Tel: 0808 800 3333
(9am-9pm Mon - Fri / 2pm - 6pm weekends)
Email: cphelpline@scope.org.uk
Web:www.scope.org.uk
Principality Buildings
13 Guildhall Square
Carmarthen
Carmarthenshire
SA31 1PR
Tel: 01267 244200
Email: info@cerebra.org.uk
Web: www.cerebra.org.uk
Changing Faces is about enabling everyone to face disfigurement
with confidence, whether or not they have a disfiguring condition.
Changing Faces
Changing Faces Centre
33-37 University Street
London
WC1E 6JN
Tel: 0845 4500275
Email: info@changingfaces.org.uk
Web: www.changingfaces.org.uk
Tel: 020 7306 6666
Web: www.csp.org.uk
A national charity committed to reducing the number of children
and young people killed, disabled and seriously injured as a result
of accidents.
Web www.capt.org.uk
CAPT has offices in London
and Northern Ireland:
Child Accident Prevention Trust
4th Floor,
18-20 Farringdon Lane,
London EC1R 3HA
United Kingdom
Tel: 020 7608 3828
Fax: 020 7608 3674
Email: safe@capt.org.uk
Child Accident Prevention Trust
Child Safety Centre
23a/b Mullacreevie Park,
Killylea Road,
Armagh
BT60 4BA
Northern Ireland
Tel and Fax: 028 3752 6521 (in UK)
Email: safetycentre@aol.com
ChildLine is the UK's free, 24-hour helpline for children in
trouble or danger.
ChildLine
Studd Street
London
N1 0QW
Tel: 020-7239 1000
Fax: 020-7239 1001
Web:www.childline.org.uk
The Children's Fund is targeted at 5-13 year olds and is a key
part of the Government's strategy to tackle disadvantages and
inequalities, which derive from child poverty and social exclusion.
Tel: 020 7273 4906 (General enquiries)
Web. http://www.cypu.gov.uk
Offers free legal advice on all issues of child law, including
education law.
Children's Legal Centre
PO Box 3314
London
N1 2WA
Education Law Advice Line
Tel: 0845 456 6811 Mon - Fri, 9.30am - 5pm
Email: nel@essex.ac.uk
Web: www.childrenslegalcentre.com
Tadworth Court
Tadworth
Surrey
KT20 5RU
Tel: 01737 365000
Fax: 01737 365001
Email: enquiries@thechildrenstrust.org.uk
Webwww.thechildrenstrust.org.uk
1st Floor, Finsbury Tower
103-105 Bunhill Row
London,
EC1Y 8TG
Tel:020 7448 9200
Email: information@chi.nhs.uk
Connexions is a new service for young people aged 13-19 and replaces
the Careers' Service and has a much wider remit.
Connexions personal advisers can give information, advice and
practical help with all sorts of things, like choosing subjects
at school or mapping out future career options. They can help
with many aspects of life.
Web: www.connexions.gov.uk
Contact a Family is a UK charity for disabled children. Their
fact sheets are excellent covering many issues including medical,
financial, lesiure and educaiton aspects of caring for disabled
children. All factsheets can be found in the Publications section
of the contact a family website.
Contact a Family
209-211 City Road,
London,
EC1V 1JN
Tel 020 7608 8700
Helpline 0808 808 3555 (Freephone 10am-4pm, Mon-Fri)
e-mail:info@cafamily.org.uk
Web: www.cafamily.org.uk
National Children's Bureau
8 Wakley Street
London
EC1V 7QE
Tel: 020 7843 1900
Fax: 020 7843 6313
E-mail: cdc@ncb.org.uk
Web http://www.ncb.org.uk
Tel: 0870 1671677
Web: www.crusebereavementcare.org.uk
In 2001 nearly 3000 cyclists between 12 - 16 were killed or injured
on the roads. If you want to protect yourself you must take cycle
safety seriously. This website gives you essential tips for staying
out of harm's way. Get street wise now by checking them out.
Web: www.cyclesense.net/fset.htm
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For younger people and children who have had a stroke.
9 Canon Harnett Court
Wolverton Mill
Milton Keynes MK12 5NF
Tel: 0845 130 7172
Email: info@differentstrokes.co.uk
Web: www.differentstrokes.co.uk
An informative website listing venues across the UK that
are accessible to people with a physical disability or difficulty.
www.disabledgo.info
The Disability Living Foundation has information
on many aspects of living with physical disabilities and their
website has links with other organisations.
Tel: 0845 130 9177 Helpline
Textline 0870 603 9176
Web: www.dlf.org.uk/
This new government site represents a step forward in helping
people to find out about their civil rights and to see more clearly
how useful the Internet can be as a source for information.
http://www.disability.gov.uk
A wide range of materials
for Special Education Needs
website: www.dfes.gov.uk/sen/
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Do it 4 Real is a series of action packed summer residential camps
for
11-17 year olds taking place between 17th July and 2nd September
2005. Twenty three camps offer you the chance to spend a week
doing something you already enjoy or trying something new. Whatever
your interests, Do it 4 Real this summer.
Web: www.doit4real.co.uk
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A Scottish advice service for families of children who need extra
help at school, to children and young people themselves and to
professionals who work on their behalf.
Enquir
Children in Scotland
5 Shandwick Place
Edinburg
EH2 4RG
Tel: 0845 1232303
Email: info@enquire.org.uk
Epilepsy Action
New Anstey House
Gate Way Drive
Yeadon
Leeds LS19 7XY
Tel: 0808 800 5050 ( Freephone helpline)
Email: epilepsy@epilepsy.co.uk
Web: www.epilepsy.org.uk
Improving the quality of life for all people affected directly
and indirectly by encephalitis. Professionals wanting a copy of
"Must Try Harder" can contact the Society direct.
7b Saville Street
Malton
Yorkshire
YO17 7LL
Tel: 01653 699 599
Web: www.encephalitis.info
Email: elaine@encephalitis.info
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Promotes and funds a treatment for severe epilepsy patients called
"Vagus Nerve Stimulation Therapy" and by
co-ordinating a national patient support network for parents,
families and carers.
Lower Ground Floor
305 Glossop Road
Sheffield
South Yorkshire
S10 2HL
Tel: 0114 2755335
Web: www.fable.org.uk
PO Box 50,
York
YO1 9ZX
Tel: 01904 621115
Information and access to useful products for children with disabilities
e.g. elasticated shoe laces that don't need tying (but look cool),
age -appropriate bibs, all-in-one vests and sleepsuits, carer-controlled
trikes, waterproof duvetseating, drinking aids, special swimming
gear, books and videos.
6 Southfield
Ickleton
Saffron Waldon
CB10 1TE
Tel: 0845 458 1124
Email: enquiries@fledglings.org.uk
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A charity for adults with ABI, has a list of personal injury
solicitors to assist people seeking the services of solicitors
experienced in personal injury litigation, in the context of brain
injury and its consequences.
4 King Edward Court
King Edward Street
Nottingham NG1 1EW
Tel: 0808 800 2244 (helpline)
Tel: 0115 924 0800 (admin)
web: www.headway.org.uk
Connecting Hands is a non-profit-making service providing visual
learning and safety products for children and adults with special
needs. It was set up by the family (and CBIT members) of a boy with
a traumatic brain injury.
Tel: 01935 83281
web: www.connectinghands.co.uk/
Information and support for children with hemiplegia.
Unit 1 Wellington Works
Wellington Road
London
SW19 8EQ
Tel: 0845 123 2372 (helpline)
Tel: 0845 120 3713 (admin)
Web: www.hemihelp.org.uk
Provdes support and advice to children and adults with an acquired
brain injury and their families across the UK. Particular expertise
in welfare rights (Benefits).
Tel: 0808 202 2252 (freephone telephone number)
Email: info@injurysupport.org.uk
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I CAN is the children’s communication charity.
Make Chatter Matter is I CAN’s UK-wide awareness-raising
campaign to highlight the importance of children’s communication
development during the early years as the foundation for learning
and development. To find out more about Make Chatter Matter go
to www.ican.org.uk/makechattermatter
8 Wakley Street
London
EC1V 7QE
Tel: 0845 225 4071
Web: www.ican.org.uk
Email: ican@ican.org.uk
Practical guidance for parents, families and organisations about
working closely together to support young people with acquired
brain injury (ABI)
Web: http://www.includemein.org
Independent Panel for Special Education Advice
England & Wales:
Tel: 0800 018 4016 (Mon-Thurs:10- 4, 7-9. Fri:10-
1, 7-9)
6 Carlow Mews
Woodbridge
Suffolk IP12 1EA
Scotland: 0131 454 0096/ 0131 454 0144
Northern Ireland: 02890 705 654
Web: www.ipsea.org.uk
Email: ipsea.info@intamail.com
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Kidsactive (formerly HAPA) is a national charity promoting play
for disabled children.
Pryors Bank
Bishop's Park
London SW6 3LA
Tel: 020 7736 4443
Web: www.kidsactive.org.uk
Kidscape is an organisation which offers support to children
facing bullying and other related problems at school. They also
offer practical advice to parents on how to support your child
if s/he is experiencing such difficulties.
Tel: 020 7730 3300
Web: www.kidscape.org.uk
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Contact if you are choosing and using a solicitor
Tel: 0870 6066575
Web: www.lawsociety.org
A new interactive website for anybody involved in, or with an interest
in learning provision for young adults who experience mental health
difficulties.
Web: www.lookingforward.org.uk
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The Motor Accident Solicitors' Society (MASS) is a non-profit
organisation. It offers clear, comprehensive advice and access
to specialist solicitors to ensure that people receive the best
possible service while dealing with their compensation claim.
Their website includes a guide to making a claim, and finding
your local MASS solicitor.
Tel: 0117 929 2560
Web: www.mass.org.uk
Swapping houses with likeminded people rather than staying in
hotels has become a holiday choice of many a frazzled family eagar
to stay somewhere equiped for their needs. Now a new website is
bringing a similar service to disabled people.
The disabilty holiday exchange site was created by disabled people
for disabled people - it is the brainchild of Theo Blackmore who
has multiple sclerosis. To find out more information
please go to www.matchinghouses.com
An organisation that you can report an unwanted or harmful reaction
by a drug or combination of drugs to.
MHRA
Market Towers
1 Nine Elms Lane
London
SW8 5NQ
Information on meningitis, a 24 hour helpline, a befriending
programme and other services.
Meningitis Research Foundation
Midland Way
Thornbury
Bristol
BS35 2BS
Tel: 0808 800 3344 (helpline)
Tel: 01454 281 811 (admin)
Web: www.meningitis.org
24 hr helpline: 01453 768 000
www.meningitis-trust.org.uk
Working for a better life for people diagnosed, labelled or treated
as mentally ill.
Web: www.mind.org.uk
15 -19 Broadway, London E15 4BQ
Tel. 020 8519 2122
Fax: 020 8522 1725
Email: contact@mind.org.uk
3rd Floor, Quebec House,
Castlebridge,
5-19 Cowbridge Road East,
Cardiff CF11 9AB
Tel. 029 20395123
Based on the Scottish Borders, Momentum's Integrate brain injury
service assists childrena nd adults who have sustained brain injuries
to live independently and to re-intgrate into their communities.
Unit 5
Abbotsford Court Business Centre
Kelso
TD5 7BQ
Tel: 01573 229728
Fax: 01573 229729
email: info.integrateborders@momentumscotland.org
Website: www.momentumscotland.org
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NCYPE is the major provider of specialist services for young
people with epilepsy in the UK .
National Centre for Young People with Epilepsy
St Piers Lane
Lingford
Surrey RH7 6PW
Tel: 01342 832243
Web: www.ncype.org.uk
Information and advice for parents of a child with special educational
needs; publications; advice on communicating with schools and
education authorities; newsletter; 'befrienders' who can support
parents at meetings and during the assessment process.
Network 81
1 - 7 Woodfield Terrace
Stanstead,
Essex CM24 8AJ
Tel: 0870 770 3306 Mon - Thursi 10am -1pm
Web: www.network81.org
Email: info@network81.org
Provides a guide 'Getting the best from Neurological Services'.
Web: www.neurologicalalliance.org.uk
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A free-phone helpline for people who would like to talk about
the challenges of caring for children.
Parentline Plus
Endway House
Endway
Hadleigh
Essex SS7 2AN
Tel: 0808 800 2222
Web: www.parentlinplus.org.uk
A national group supporting and encouraging parents who want
their disabled child educated in a mainstream school with adequate
support, rather that in a special unit. Information; local support
groups, training programme for parents to enable them to help
their children.
Parents for Inclusion
Unit 2
70 South Lambert Road
London SW8 1RL
Tel: 020 7582 5008
Web: www.parentsforinclusion.org
Email: info@parentsforinclusion.org
The Education Act 1996 places a duty on LEAs (Local Education
Authorities) to make arrangements for all parents whose children
have special educational needs (SEN) to have access to Parent
Partnership Services, and to informal arrangements for solving
disagreements about SEN.
The aim of Parent Partnership Services is to help parents make
appropriate and informed decisions about their children's education.
England:
Web www.parentpartnership.org.uk and click on services
Tel: 0207 843 600
Wales:
Web www.snapcymru.org
Tel: 02920 388776
Scotland:
Email SENinfo@childreninscotland.org.uk
Tel: 0131 2222 400
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12 City Forum,
250 City Road,
London
EC1V 8AF
Tel. (020) 7250 3222
Rathbone Special Education Advice
Provides advice and support to parents of children with special
educational needs, helping them to gain for their child and education
appropriates to their potential.
School support; Statementing and assessments; appeals and tribunals;
annual reviews; finding a school; admissions and exclusions; education
law and procedures. Helps parents write letters and prepare for
meetings and appeals.
Rathbone Special Education Advice
Churchgate House
56 Oxford Street
Manchester M1 6EU
Tel: 0800 731 5321
Email: advice@rathbone-ci.co.uk
Web: www.rathboneuk.org
Offers training courses for young people with ABI, usually from
16years.
Rehab UK
Windermere House
Kendall Ave
London
W3 0XA
Tel: 020 8896 2333
Web: www.rehabuk.org
The national charity for road traffic victims. Campaigns on road
safety issues.
Roadpeace
PO Box 2579
London NW10 3PW
Tel:020 8964 1021
Web: www.roadpeace.org.uk
Information, support and advice for anyone with a serious sight
problem.
The new See it Right Book and Companion CD-Rom is now available.
PO Box 173
Peterborough PE2 6WS
Tel. 0845-766 99 99 (for the price of a local
call, UK callers only)
Email helpline@rnib.org.uk
Web www.rnib.org.uk
Royal College of Speech & Language Therapists
Tel: 020 7378 1200
Web: www.rcslt.org.uk
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Scottish Association of Chaplains in Healthcare
To establish and promote good working relationships with organisations
concerned with the promotion of healthcare.
Web: www.sach.org.uk
PO Box 833
Milton Keynes
Buckinghamshire
MK12 5NY
Tel: 0808 800 3333
(9am-9pm Mon - Fri / 2pm - 6pm weekends)
Email: cphelpline@scope.org.uk
Web:www.scope.org.uk
Sense is the national voluntary organisation supporting and campaigning
for people who are deafblind or have associated disabilities,
their families, their carers and professionals who work with them.
People of all ages and with widely varying conditions use Sense's
specialist services.
Sense
11-13 Clifton Terrace,
Finsbury Park,
London, N4 3SR
Tel: 020 7272 7774
Textphone: 020 7272 9648
E-mail: enquiries@sense.org.uk
Web: www.sense.org.uk
National Bureau for education for post-16 students with disabilities.
Head Office:
Chapter House
18-20 Crucifix Lane
London SE1 3JW
Freephone helpline: 0800 328 5050
Email: info@skill.org.uk
Web: www.skill.org.uk
Supporting Head Injured Children in School
43/45 Stanley Road
Warmley
Bristol
BS15 4NX
Tel: 0117 9673279
Email: info@shipsproject.org.uk
Web: www.shipsproject.org.uk
Sibs is for people who grow up with a brother or sister with
special needs, disability, chronic illness.
Meadowfield,
Oxenhope,
West Yorkshire,
BD22 9JD
Information Line Number: 01535 645453
Email: info@sibs.org.uk
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New website launched to help doctors, parents and teachers offer
support to children with speech, language and communication difficulties.
The site provides info, news and facts.
Web: www.talkingpoint.org.uk
Trust-Ed to provide educational services for young people with acquired brain injuries. We are a group of professionals and parents with many years experience of working with young people with acquired brain injury (ABI), their families and schools.
Our vision is to improve the lives of young peole with ABI, to support and empower their families and to maximise their future social, emotional and employment prospects.
Web: www.trust-ed.org
The Trust for the Study of Adolescence (TSA) is a registered
UK charity and applied research and training organisation. TSA’s
primary commitment is to improving the lives of young people.
We believe that there is a lack of knowledge and understanding
about adolescence and young adulthood.
Tel: 01273 693311
Email: info@tsa.uk.com
Web: www.tsa.uk.com
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Enables deaf, blind and disabled people of all ages to learn
I.T.
U Can Do I.T.
4 Woodfall Street
London SW3 4DJ
Tel:020 7730 7766
Web: www.ucandoit.org.uk
Looking for contact details of your local MP? Search by postcode,
MP or constituency.
Go to www.locata.co.uk/commons/ or theyworkforyou.com
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A national children's charity working to give disabled children
and young people independent mobility.
1 Warwick Row
London SW1E 5ER.
Tel: 0207 233 6600
Email: info@whizz-kidz.org.uk
Web: www.whizz-kidz.org.uk
Based in SE England and provides a UK wide specialist service
of assessing the need for and setting up of computers and all
aspects of technology for brain injury survivors.
Tel: 01983 299277
Email: darren@wightwizard.co.uk
Publications on working with bereaved children and organises
weekend camps for children.
Tel: 0845 2030405
Web: www.winstonswish.org
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For young people affected by a close relative with a disability
or other special needs. Holds details of local projects that could
support brothers and sisters.
C/o The Children's Society
Young's Yard
Finches Lane
Twyford
Nr Winchester SO21 1NN
Tel: 01962 711511
Web: www.childrenssociety.org.uk/youngcarers
Information and advice for anyone with concerns
about the mental health of a child or young person.
Young Minds
102 - 108 Clerkenwell Road
London
EC1M 5SA
Tel:0800 018 2138
Web: www.youngminds.org.uk
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